There is no uniform criterion to define the entity “young stroke” in scientific literature.

2013 Inaugural Rally for Medical Research as featured in POLITICO

Amy Edmunds is a thought leader who changes the way we view stroke.

As an NIH-funded researcher, Amy evangelizes the unmet needs of young adult stroke survivors on such global platforms as the World Stroke Congress and the International Stroke Conference. She serves as the first American stroke survivor elected by international peers to the Board of Directors of the World Stroke Organization – the world’s leading organization in the fight against stroke.

Amy is an award-winning contributor to Stroke Connection Magazine – an online publication of American Heart Association/American Stroke Association.

YoungStroke 2015 – the first international scientific conference to exclusively raise awareness about the management and treatment of stroke among young adults – was envisioned and executed by her to include healthcare professionals comingled with the survivor community.

As a cryptogenic stroke survivor since 2002, she established YoungStroke, Inc. as an outcome of her graduate studies in 2005 as a 501(c)(3) patient advocacy organization. Its mission benefits other survivors and their caregivers.

 
  • I have known Amy through our respective roles as Board members for the World Stroke Organization. Amy is a dynamic, passionate, articulate and intelligent operator advocating for the organizations and stakeholders she represents. She has the great quality of curiosity about the way the world works, and this leads how to greater understanding of what is possible, and to create new and exciting, innovative initiatives and partnerships. 

      

    Jon Barrick
    President, Stroke Alliance for Europe (SAFE)
  • I became interested in young stroke when during my professional career I came to meet many young patients with stroke and realized that the situation and challenges for these persons was quite different to stroke in the elderly. Very many inspired me by their determination and stamina in training and adapting to life after stroke … many of whom will have lifelong disabilities.

     

    Bo Norrving
    President, World Stroke Organization
  • I had a chance to talk with Amy Edmunds… when I sat next to her on an airplane trip last year. She reminded me that a quarter of all strokes occur in the young. Still, strokes in the young receive relatively little attention in the medical community. Amy also reminded me that the distinct needs of young stroke are often mitigated by current protocols.

    Francis Collins, MD, PhD
    Executive Director, National Institute of Health